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School helps grant wish for boy with rare skin disease

Updated: 05/12/2014 7:53 AM | Created: 05/12/2014 7:49 AM
By: Nikki Ibarra, KOB Eyewitness News 4

Julian Acosta is your typical 7-year-old boy who loves playing with Legos.

His mom, Susana, describes him as fun, independent and a little boy with a lot of strength. Julian was born with a rare skin disease called epidermolysis bullosa. Something as simple as a soft touch to the skin can cause severe blisters.

"They look like they're third degree burns. He looks like a burn victim but it's constant. It never ends," Acosta said.

But Julian is a fighter. He insists on doing things on his own in class, and ask any teacher or student at Seven Bar Elementary and they'll tell you – Julian is always asking how they're doing.

"Because they're my friends," Julian said.

Thinking of others first is just how Julian is. That's the theme at Seven Bar, where Julian goes to school.

"All kids are awesome when it comes to accepting," Acosta said.

In the last four years, students have raised more than $18,000 and it's all gone to the Make-A-Wish Foundation, which grants wishes to kids with life-threatening diseases.

For the first time in the school's history, a wish has been granted to one of their own. Independent, kind and Lego-loving Julian is the one whose wish is coming true.

"I just think that it was awesome," he said.

His wish? A family trip to LEGOLAND.

"He looked at me and he started crying and his reaction was, 'Why me? You know, there's so many other kids that are sick. Why me?'" Acosta said.


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